The concept of quality of life in medicine
Abstract
Introduction. The concept of health-related quality of life (HRQoL) is becoming increasingly relevant nowadays. However, there are almost no studies on the history of this concept, which is necessary for a comprehensive understanding of health-related quality of life. Aim. The paper aims to examine historical and contemporary approaches to the concept of HRQoL. Materials and methods. A review and analysis of the scientific literature on QOL and HRQoL over the past 40 years was conducted. Data were collected and analyzed from the following scientific databases: SCOPUS, GoogleScholar, Springer, PubMed. Results. The analysis showed a certain evolution of the concept of quality of life since its first appearance in the medical and psychological literature. Initially the concept was focused on medical indicators, particularly life expectancy, self-care, mobility, etc. Then, researchers shifted their attention to disease perception, psychological well-being, life satisfaction, including such significant components as physical, cognitive, emotional, social (role) functioning. Thus, nowadays, the multidimensional and multifactorial nature of HRQoL is recognized. Therefore, QOL assessment takes into account all life aspects that affect health and well-being. Such an understanding of QOL provides a personalized approach to each patient. Conclusion. There are some common features in the spectrum of approaches to the concept of HRQoL. However, there are also distinct differences, especially in terms of integrity, levels of generality, theoretical rigor, and the role of HRQoL in the structure of other concepts that describe a person as a biopsychosocial integrity.
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2. Wasserman L.I. Shchelkova O.Y. Meditsinskaya psikhodiagnostika: Teoriya, praktika, obuchenie [Medical psychodiagnostics: Theory, practice, training] St. Petersburg. Moscow. Publ. Center “Akademiya”. 2004:736.
3. Shchelkova O.Yu. The tasks of psychological diagnosis in the clinical medicine. Vestnik Yuzhno-Uralskogo gosudarstvennogo universiteta. Seriya: Psikhologiya = Bulletin of the South Ural State University. Series: Psychology. 2008;32(132):81–90
4. Fayers P.M. Machin D. Quality of Life, the Assessment, Analysis and Interpretation of Patient-Reported Outcomes. Wiley. Chichester. 2007:568
5. Ostenfeld E. Aristotle on the Good Life and Quality of Life, In: Nordenfelt L. (eds.) Concepts and Measurement of Quality of Life in Health Care. European Studies in Philosophy of Medicine. 1994;47. Springer, Dordrecht. DOI: https://doi.org/10.1007/978-94-015-8344-2_2
6. Prutkin J.M., Feinstein A.R. A History of Quality of Life Measurements. Yale Medicine Thesis Digital Library. 2002;424. Available at: http://elischolar.library.yale.edu/ymtdl/424 (accessed 14.09.2021).
7. Karnofsky D.A., Burchenal J.H. Evaluation of chemotherapeutic agents. MacLeod C.M. ed. New York. Columbia University Press. The clinical evaluation of chemotherapeutic agents in cancer. 1949:191–205.
8. Ware J., Gandek B., IQOLA Project Group. The SF-36 Health Survey: Development and Use in Mental Health Research and the IQOLA Project. International Journal of Mental Health. 1994;23(2):49–73. Available at: http://www.jstor.org/stable/41344687 (accessed 14.09.2021).
9. Pennacchini M., Bertolaso M., Elvira M.M., De Marinis M.G. A brief history of the Quality of Life: its use in medicine and in philosophy. Clinical Therapeutics. 2011;162(3):e99-e103.
10. Wasserman L.I., Trifonova E.A. Humanistic psychology, quality of life and value consciousness of the personality. Sibirskii psikhologicheskii zhurnal = Siberian Journal of Psychology. 2011;40:129–135.
11. Elkinton J.R. Medicine and the quality of life. Annals of Internal Medicine. 1966;64(3):711–714. DOI: https://doi.org/10.7326/0003-4819-64-3-711.
12. Ware J.E. Standards for validating health measures: definition and content. Journal of chronic diseases. 1987;40(6):473–480. DOI: https://doi.org/10.1016/0021-9681(87)90003-8
13. Novik A.A., Ionova T.I., Kaind P. Kontseptsiya issledovaniya kachestva zhizni v meditsine [The concept of quality of life research in medicine]. St. Petersburg, Albi. 1999:140.
14. Engel G.L. The biopsychosocial model and the education of health professionals. Annals of the New York Academy of Sciences. 1978;310:169–187. DOI: https://doi.org/10.1111/j.1749-6632.1978.tb22070.x.
15. Engel G.E. The clinical application of the biopsychosocial model. American Journal of Psychiatry. 1980;137(5):535–544. DOI: https://doi.org/10.1176/ajp.137.5.535.
16. Evsina O.V. Quality of life in medicine is an important indicator of a patients health (review). Lichnost v menyayushchemsya mire: zdorove, adaptatsiya, razvitie = Personality in a changing world: health, adaptation, development. 2013;1(1):119–133.
17. Kaplan R.M, Bush J.W. Health-related quality of life for evaluation research and policy analysis. Health Psychology. 1982;1(1):61–80. DOI: https://doi.org/10.1037/0278-6133.1.1.61
18. Johnson J.R., Temple R. Food and Drug Administration requirements for approval of new anticancer drugs. Cancer Treat Reports. 1985;69(10):1155–1157.
19. Skevington S.M. Advancing cross-cultural research on quality of life: observations drawn from the WHOQOL development. World Health Organisation Quality of Life Assessment. Quality of Life Research. 2002;11(2):135–144. DOI: https://doi.org/10.1023/a:1015013312456
20. Patrick D.L. Erickson P. Health status and health policy: Quality of life in health care evaluation and resource allocation. Oxford University Press, New York, 1993:478.
21. Aaronson N.K. Quantitative issues in health-related quality of life assessment. Health Policy. 1988;10(3):217–230. DOI: https://doi.org/10.1016/0168-8510(88)90058-9
22. Dijkers M.P. Individualization in quality of life measurement: instruments and approaches. Archives of Physical Medicine and Rehabilitation. 2003;84(4-2):S3–14. DOI: https://doi.org/10.1053/apmr.2003.50241
23. Wilson I., Cleary P. Linking clinical variables with health-related quality of life: A conceptual model of patient outcomes. JAMA: the journal of the American Medical Association. 1995;273:59–65. DOI: https://doi.org/10.1001/jama.273.1.59
24. Ferrans C., Zerwic J., Wilbur J., Larson J. Conceptual Model of Health-Related Quality of Life. Journal of Nursing Scholarship. 2005;37(4):336–342. DOI: https://doi.org/10.1111/j.1547-5069.2005.00058.x.
25. Bakas T., McLennon S.M., Carpenter J.S. et al. Systematic review of health-related quality of life models. Health Qual Life Outcomes 2012;10:134. DOI: https://doi.org/10.1186/1477-7525-10-134
26. Wasserman L.I., Trifonova E.A., Shchelkova O.Yu. Psikhologicheskaya diagnostika i korrektsiya v somaticheskoi klinike [Psychological diagnostics and correction in the somatic clinic]. St. Petersburg, Rech. 2011:271.
27. Wasserman L.I., Trifonova E.A. Metodologiya issledovaniya svyazannogo so zdorovem kachestva zhizni [Methodology of research of health-related quality of life]. Psikhologicheskaya diagnostika rasstroistv emotsionalnoi sfery i lichnosti [Psychological diagnostics of disorders of the emotional sphere and personality]. Ed. L.I. Wasserman, O.Y. Shchelkova. St. Petersburg, Skifiya-print. 2014:30–43.
28. Wasserman L.I., Trifonova E.A., Fedorova V.L. Personal disease picture in quality of life structure in individuals with physical illnesses. Sibirskii psikhologicheskii zhurnal = Siberian Journal of Psychology. 2008;27:67–71.
29. Gryaznova E.V., Ageeva E.L., Batrakova N.V., Vorontsov D.A. Criterion of quality of life related to health: the need to develop as a category of pedagogical science. Azimut nauchnykh issledovanii: pedagogika i psikhologiya = Azimut of Scientific Research: Pedagogy and Psychology. 2020;9(1(30)):250–253. DOI: https://doi.org/10.26140/anip-2020-0901-0059
30. Wasserman L.I., Shchelkova O.Yu., Dubinina E.A. Medical psychodiagnostics: modern research methodology and integration processes in psychology and medicine. Meditsinskaya psikhologiya v Rossii = Medical psychology in Russia. 2014;4(27). (in Russ.). Available at: http://mprj.ru (accessed 12.10.2021).
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